NYSDA Publications

NIH Issues Research Findings on Informed Consent for Human Genome Editing

The National Institutes of Health (NIH) has issued research findings from the National Human Genome Research Institute (NHGRI) on what patients, parents, and physicians wanted and needed to know about genome editing to make informed decisions about participating in genome-editing clinical trials.  NIH notes that as human genome editing grows, many questions remain about ethical, legal, and social implications of the technology.  To read the NIH announcement and summary of the research finding about what goes into informed consent for human genome editing, use the link below.